Saturday, July 11, 2015

Thinking before you speak

I used to pride myself on having a strong back bone, but within the last year I think it's started to slip. Or since Brock's diagnosis I've gotten more sensitive. I have people in my life who act like Autism doesn't exist. That if you "ignore" behaviors they'll just go away. I've gotten really good during his almost 7 years of life at setting time limits for activities. Brock can handle 3 hours but no more then 4. Once it hits the 4 hour mark if we don't leave a meltdown will ensue. I’ve really put my foot down since he started his different therapies on this, and I've found that I'm having problems with some people accepting this. I get that if its not a part of your life that it's a strange concept to get.

 It embarrasses Brock if he has a meltdown in front of people now that he's older, and getting him out before that happens is my number one priority. I know the cues of an oncoming meltdown..I try everything to prevent it,  but 90% of the time getting him out of the situation before he becomes overstimulated is the only way. He can't control himself and he does and says things that are shocking to others that he would never do in normal circumstances. If you get too close you can get hurt. Brock is not a violent person.

 When you tell a parent of a special needs child that their way isn't that great, you need to let your child have more fun, he used to be able to do this for longer periods of Time, or ignore him he's just a brat-- you're really not giving helpful Input. No matter how wrong you think my parenting methods are. There's literally  been a lot of blood, sweat and tears and a big team of therapists working along with me  to get him to a point where he's able to adapt to things like everyone else. Brock has Autism,  he isn't deaf. If you say negative things about these  methods with him in the room he starts to slip from following them. Which makes him regress and takes twice as much work then it initially did to get him to the point he needs to be. He thrives on a schedule. Im always open to discussing and teaching others about my sons  Autism. When you say it isn't fair that my child can't play like everyone else, trust that I've shed many tears over this same thing. I would give every last piece of myself for my child to have one day of normalcy. But that wasn't in the cards, I've accepted it, Autism isn't going anywhere.